Sunday fun

Today after church I had to take Maddie to the walk in clinic-she has an ear infection. This evening, after supper, we went to feed the fish and turtles. I love going to the pond to do that-it is cheap therapy:) Now, we are getting everything ready to leave for Cross City tomorrow morning. I just wanted to share some pics from the day and also the pics of the girls in their new uniforms. Check out that pic of the bird eating the fish! Click on it to enlarge it-it is pretty cool.

One last trip..

The kids and I (along with Brooke's best friend) are going back up to Cross city for one last time before my surgery. I really wanted to just take some time to spend with them and have fun with them since I will not be able to do anything with them for several weeks after my surgery. We are going to go to the springs and we are just gonna kick back and relax and spend some time together-we are really looking forward to it! We will be back on Thursday because Brooke and Chelsea are going to "Blizzard Beach" with the youth group on Friday. That next week is going to be kinda hectic-we are going to try to get everything ready for the kids to start school, it is also my best friend's B-day so we are having a "Girl's night out" on Tuesday. Then Wednesday I have my pre-op appt at USF. My kids are all going to Pensacola, with Brett's parents, to visit Brett's brother and his family the week of my surgery-I think that it is best that way so they will not be as concerned for me and my mom will be able to stay with me at the hospital without worrying about taking care of the kids. I am not really that nervous about the surgery-more concerned about the recovery! I am also worried about getting sick from the anesthesia and pain meds-the 2 times that I had surgery in the past I woke up "puking". I do not handle pain meds very well! The last time I was in the hospital they gave me a med to keep me from getting sick from the pain meds and it did not work. I am ramblin' on tonight-huh? Anyhoo..just something ya'll can help me pray about. It is bad enough to be in pain, but then to be sick on top of that (which then makes the pain worse) is NO fun! Some people act as though I should not have the surgery-I guess because of the risks and because there are no guarantees (my surgeon was upfront about that). BUT...there are no other options for me. The surgeon told me that my spine was too far gone for anything else to work-it is either "live with it" or try the surgery. I am DONE "living with it"-tired of it. I have been praying for years for insurance so I could get help-now that I have it-I do not understand why people are questioning my decision. I did not even need to "think" about it-the surgeon told me about the surgery and I made the date within mins. This is an answer to prayer....LOTS of prayer.....lots of tears. I am sure that 2 weeks from now it may not "feel" like that-but I am believing that the fusions will work and I will be better in the end.

"Ming Ming's" B-day

Brooke has been given the nick name "Ming Ming" by her cousins and it has caught on-she even wanted her B-day cake to say "Happy Birthday Ming Ming". It is from a children's show "The Wonder pets"-Brooke, her sister and their cousins were all being goofy one night (while we were in Cross City) and they were making fun of different kid's shows-some how-Brooke got a new nickname out of it all. Anyhoo-here are some pics from her party.

My "Sista"

Tonight I am going to be catchin' a movie with Karen (I've got a FREE ticket! Gotta love that!). She is finally back from vacation! Anyhoo, we are going for coffee and a movie and I am looking forward to spending time with her. I have been in serious need of some "sista" time! I am so blessed to have her (and all my other "sistas"!).

I came across this saying in one of my old college journals and I thought that it summed up the "what really matters" blog below. "In the questionable things let there be liberty; In the important things let there be unity. In all things-let there be love." I can not remember who said it, or where I even got it from, but I think that it is appropriate.

Weight Watchers

Today was my weigh in at WW. I lost another 1.6 lbs! I am very happy with that since we had pizza, B-day cake and ice cream last night. Not that it would actually show up on the scale this soon-but when I eat "junk" my body retains water like crazy. Anyway-I wanted to update everyone-so, since I got "serious" 2 weeks ago and started going to meetings weekly (and actually followed the program!) I have lost 4.4 lbs. I am thrilled with that especially since I have not been exercising at all (I know I need to-I am gonna try harder!).

What really matters

Ok-I already know that my family is....well...."different". I get that. And I realize that I do not "fit the mold". I am ok with that too. What I do not understand is why other people are so caught up in things that really do not matter. Let me back up a little and say (for those of you who may not know)-I was in a car accident in 2004-it changed my life and how I view the world around me. In a matter of seconds my life could have been taken (thank God for seat belts!! USE them!). It was after my accident that the doctors found the tumor in my spine-I was shifted from doctor to doctor-test after test, and it took months to find out that I did not have cancer. Dealing with all of it really put my life into perspective and I realized that a lot of what we think "matters" really has no impact on our lives. Most of the things that we fret over and worry about-mean nothing in a life or death situation. I no longer worry about the small stuff, you WILL see me in Wal Mart with my hair pulled up, wearing no make up. You may see my kids (or me!) with pink hair, or chunky blond highlights. You will definitely find me wearing jeans on a Sunday morning (gasp!)-or even capris-with my tattoo proudly displayed! You will see video of me, my family, or my husband acting crazy-dancing to Toby Mac. None of that "stuff" matters. I have heard from a few of my readers that we are a "crazy" family (and not in a good tone-I will add)-it really is ok. They (or you) may not understand me-you may judge me by my appearance, you may not appreciate the things I find funny, you may even be offended by my kids having pink hair-but if you really knew me-if you understood all I have gone through to get to this point, you may be more accepting. I never want to hurt anyone, or truly offend people-but some people are going to be offended no matter what you do. So, I am going to live my life, really live my life, appreciating each and every day-knowing it is a gift from God. I can learn to accept differences in other people-but I really wish that everyone could know "what really matters" and what doesn't. I wish you all...the important things in life-family, health, happiness, love...... .

Happy Birthday to my "Baby Girl"!! Today Brooke is 12 years old!! WOW! Where did the time go? It is hard to believe that she is already 12. :( She has become such a beautiful young woman and I am SOOOO proud to be her Mother! She has such a caring heart, she has an incredible sense of humor (she keeps us laughing!!), she can dance "like no body's business", she is brilliant (if I may say so myself)....she is truly beautiful inside and out! Happy Birthday "Ming-Ming"!! I love you!

More info

I got a little more info on what kind of surgery I will be having. I guess they will put some screws into my vertebrae and place a "metal cage" on my spine-then they take some bone from my hip and place it in (and around?) the metal parts- The bone is supposed to grow over the metal pieces and cause a fusion of all of the bones from L4-S1 (within about 9 months). One question...will I now make metal detectors go off? ;) They called me this morning and wanted to move the surgery to next Tuesday-July 15th, but Aug 5th is a better date for my Mom to come down to help me. I am kinda glad it worked out that way-I am going to try and get out 6 weeks worth of energy between now and then! I want to run, and swim and dance........

Every doctor I have seen has asked me what I did to get my spine in such bad shape-yesterday, the doc asked me if I was an "athlete"-uhhh...NO! He told me that the type of spinal injuries that I have are what they expect to see in pro football players! Makes you wonder, huh?

Neurosurgeon #2 appt

So I guess the "no hope" thing worked-I am scheduled for a
Transforaminal lumbar interbody fusion "TLIF" surgery (L4-S1) on Aug. 5th. I have mixed feelings about it-I am glad that I am finally getting something done but I am not looking forward to the recovery. Everyone knows that I can't sit still-it is going to be hard to sit still for 6 weeks! Your prayers are appreciated!

Our day

Today has been a busy day-this morning I put pink (yes..pink) highlights in Brooke's hair-just something crazy and fun to do. Then, we went to the beach for a while-then we came home and swam in our pool. After lunch, I finally finished editing the church directory pictures and then I took a long nap! We just got home from church and I am getting ready to lay back in my "dormia" (I love my bed! :) ) and watch some TV. Tomorrow is my neurosurgeon appt-this one is in Tampa and I am dreading the drive. I am tired of having to find my way to these appts by myself! Anyway-I am still not hopeful, but I am still going none the less. I will let everyone know what the new doc says.

Weight loss update

I weighed in at Weight Watchers this morning and I lost 2.8 lbs this week! I tried at a new meeting time/location last Monday morning and I really liked it so I changed my weigh in day. I followed the Flex program all week, I saved all my 35 flex points for our weekend trip (and I used them all on Brooke's B-day ice cream cake! Yum!). Anyhoo-I am doing well on the program and I am really enjoying the journey!

Our trip pics

We are back in town, here are some pics from the weekend. The kids and I are gonna be making another trip back up there, once I get past the doctor's appts I have coming up, but we are home for now. The pics are of Brett and I taking all the kids for a walk on Friday night.

update

I just got a call from USF and they will take my insurance. I have an appt. on July 10th. I am grateful that they have agreed to see me but I refuse to be hopeful at this point. Please contnue to keep me in your prayers-I need them badly right now!

Neurosurgeon appt

Today I had my neuro appt. and once again, my hope was crushed! I am so tired-of all of it. The doctor told me that my case was "too complicated" for him to handle and he referred me out to the neurosurgeons at the University of South Florida. I am so frustrated-I feel much like a "ping pong ball", being bounced from doctor to doctor! It seems everyone is interested in seeing me and reviewing my case but no one wants to do anything about it! I just keep getting passed along to the next doctor. The doctor today told me that I need a biopsy of the tumor, but that it would be difficult since they would have to go through bone to get to it. I just do not understand why we are still even talking about this tumor! I thought it was already decided what it was (a giant notochordal rest)-all the docs I have seen have said that it may not even be the source of my pain-since I have so much other "stuff" going on in the same area of my spine. I asked the doctor why we can't just "fix" all the other stuff and find out if that makes me better. He said that I need a spinal fusion and that he no longer preforms them since they only work 50% of the time (those odds seem a lot better than the odds I face with out surgery!). Anyhoo, I am back at square one-I have called USF-it doesn't look like they even take my insurance, but they are looking into it. I do not know where to go from here-I have considered calling an orthopedic surgeon that is local-even though everyone I have talked to has told me that I should only see a neurosurgeon. I have also considered calling the doctor from Washington State University, who has been kind enough to view my films and offer any help she can. She has emailed me and called me several times and she has even given me her direct cell phone #-she has done a study on Giant Notochordal Rests and has used my case at the university. Now that I have medical insurance she may be able to get the surgeons there to help me. I am just so tired-I do not feel like dealing with it at all. I just want to go to sleep-I want to give up on even trying to get help. It is emotionally draining for me to have to continue getting my hopes up, only to have them crushed again. This has been going on for 4 and 1/2 years now-I am just so tired of it. I have already been given the "trust God" speech from my Mom (I love you Mom! :) )-it is not that I do not trust God, it is just that I am tired of being in pain and waiting (hoping) to get help. Well, once again, my "realness" is showing-huh? I have always said I am "real" on this blog-the good, bad and the ugly included! Thanks for "listening". I need a nap now!